Yellow Pages |   News Updates |   Local Jobs |   Events Calendar |   Movie Times |
Rocklin and Roseville Today Local Events Calendar
    (Independent and Locally Owned)
 

Grandfather Appreciates Granddaughter with Rett Syndrome




A National Institutes of Health (NIH) website defines Rett syndrome as a neurodevelopmental disorder affecting girls almost exclusively. It's characterized, explains NIH, by "normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems walking, seizures, and intellectual ability."

Gregg Olson of Amboy, Minnesota, has a five-year-old granddaughter with Rett syndrome. In an interview, he said, "Evie can't walk or talk, but she can make sounds. She often has more frustration than most girls because she has to look at things to be able to tell you she wants them. She can roll on the floor, but can't really crawl anymore. And it will get worse."

His granddaughter's life expectancy will be like other American girls until her mid-20s, he said, but after that she has a greater risk of death. Olson has heard of women in their 40s with Rett syndrome. According to NIH, the disorder affects one live female birth in about 10,000.

"Evie is a wonderful little girl," he said. "She's taught me to take joy in the smallest things. An average five-year-old girl would be yelling and running around and carrying on, for example, but if Evie looks at me and giggles, I get a tremendous reward. She's also taught me to not look too far into the future. For instance, when she was first diagnosed, the doctors talked about her having seizures and the idea of my granddaughter having seizures just blew me away. But a (church prayer) group helped me through that. I now enjoy her for who she is right now. I enjoy whatever time I get to spend with her."

Olson also has begun looking at the bright side of situations normally not seen as bright. His granddaughter had a feeding tube installed, and although that wasn't Olson's ideal, Evie no longer has to experience the foul taste of her medicine. It goes directly into her stomach.

He offered this advice to parents: "First, don't try to understand why this has happened to you because you won't be able to understand. Just know that God doesn't make mistakes and you didn't do anything wrong. Also, we've gone through tremendous ups and downs over the last five years and sometimes the downs have been brutal. Pray for calm in the midst of the storm."



Share It.






more news Print This Article


LittleGiantFudge.com and Palmer Bus Service make this column possible.

Daniel J. Vance is a licensed professional counselor and national certified counselor from Vernon Center, Minn. His weekly newspaper column Disabilities has been published in more than 260 newspapers.

Daniel J. Vance may be reached at www.danieljvance.com



Placer County News Headlines

New Low Down Payment Mortgages: As Low As 3 PercentRoseville Realtor, Julie Jalone of MagnumOne Realty, writes about new low down payment loans being backed by Fannie Mae and Freddie Mac.

Top 10 Measures Likely for 2016 California BallotThe General Election ballot in 2016 is likely to have more statewide ballot measures on it than California voters have seen in a long time.

Roseville Police Make Arrests in Date Rape Drug InvestigationDetectives from Roseville's Vice and Narcotics Enforcement Team (VNET) are investigating regional sales of a synthetic narcotic drug similar to GHB, better known as the "date-rape drug

Placer Ranch Collaboration for Higher EducationRoseville, CA - Sacramento State, Sierra College and Westpark Communities, the developer of the proposed Placer Ranch, announced today an agreement to collaborate on higher education offerings at Placer Ranch.

Treehouse Masters Christmas Episode Filmed in Placer CountyThe Christmas episode of the very popular TV series "Treehouse Masters" was shot entirely in Placer County.

Coalition for Placer Youth Targets Teen Alcohol UseThe Coalition for Placer Youth and local law enforcement agencies are offering signage to stores that sell alcohol in Placer County, warning patrons about fines and possible jail time

Thunder Valley to Distribute Meals to Sacramento FamiliesThe United Auburn Indian Community Tribal Council and the Executive Team of Thunder Valley Casino Resort are celebrating the holiday season by delivering over two tons of food

Joshua Alpine Named to ACWA PostJoshua Alpine of the Placer County Water Agency has been named as vice chairman of Region 3 of the Association of California Water Agencies

Dropping Gas Prices Make Happier Holiday TravelersRetail gas prices continue their push downward with low prices in Roseville hovering around $2.55

Mazda CX-9: Solid Choice Among Large SUVsThe Mazda CX-9 has gained appeal over the years because it's always been considered refined, stylist, and from this vantage point, never as luminous in appearance as

Roseville California Crime Brief Digest (12.14.14)Crime brief update report for Roseville, California December 14, 2014

Placer County Board Honors Elizabeth Jansen The Placer County Board of Supervisors honored Elizabeth M. Jansen, a community volunteer and philanthropist.




more news

Featured Yellow Pages Categories

Auto

Business

Health and Fitness

Home Improvement and Services