Yellow Pages |   News Updates |   Local Jobs |   Events Calendar |   Movie Times |
Rocklin and Roseville Today Local Events Calendar
    (Independent and Locally Owned)
 

Grandfather Appreciates Granddaughter with Rett Syndrome


Share It.




A National Institutes of Health (NIH) website defines Rett syndrome as a neurodevelopmental disorder affecting girls almost exclusively. It's characterized, explains NIH, by "normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems walking, seizures, and intellectual ability."

Gregg Olson of Amboy, Minnesota, has a five-year-old granddaughter with Rett syndrome. In an interview, he said, "Evie can't walk or talk, but she can make sounds. She often has more frustration than most girls because she has to look at things to be able to tell you she wants them. She can roll on the floor, but can't really crawl anymore. And it will get worse."

His granddaughter's life expectancy will be like other American girls until her mid-20s, he said, but after that she has a greater risk of death. Olson has heard of women in their 40s with Rett syndrome. According to NIH, the disorder affects one live female birth in about 10,000.

"Evie is a wonderful little girl," he said. "She's taught me to take joy in the smallest things. An average five-year-old girl would be yelling and running around and carrying on, for example, but if Evie looks at me and giggles, I get a tremendous reward. She's also taught me to not look too far into the future. For instance, when she was first diagnosed, the doctors talked about her having seizures and the idea of my granddaughter having seizures just blew me away. But a (church prayer) group helped me through that. I now enjoy her for who she is right now. I enjoy whatever time I get to spend with her."

Olson also has begun looking at the bright side of situations normally not seen as bright. His granddaughter had a feeding tube installed, and although that wasn't Olson's ideal, Evie no longer has to experience the foul taste of her medicine. It goes directly into her stomach.

He offered this advice to parents: "First, don't try to understand why this has happened to you because you won't be able to understand. Just know that God doesn't make mistakes and you didn't do anything wrong. Also, we've gone through tremendous ups and downs over the last five years and sometimes the downs have been brutal. Pray for calm in the midst of the storm."






more news Print This Article


LittleGiantFudge.com and Palmer Bus Service make this column possible.

Daniel J. Vance is a licensed professional counselor and national certified counselor from Vernon Center, Minn. His weekly newspaper column Disabilities has been published in more than 260 newspapers.

Daniel J. Vance may be reached at www.danieljvance.com



Placer County News Headlines

Police Officer Killed: Gunned Down in Arden Way LotDeputy Danny Oliver, 47 a Sacramento County Sheriff's Deputy was killed in the line of duty while investigating a suspicious occupied vehicle within a business parking

California Housing Market: 2015 ForecastRealtor, Julie Jalone of MagnumOne Realty in Roseville, writes about the recent housing forecast or 2015 released by the California Association or Realtors and where the market is currently.

3 Killed, Alcohol Suspected in Deadly Sacramento CrashOn October 23, 2014 at approximately 2:24 p.m., an unknown male driver was driving a 2008 Chevrolet Tahoe on Howe Ave north of Burney Way at an unknown speed.

Nissan Rogue Features Many Enviable ChangesIn effort to attract more male buyers, Nissan reportedly decided to alter the exterior look of the Rogue in its 2014 redesign. Not a bad move. Most men don't

New Nursing Village Ribbon Cutting in RocklinRocklin, CA- Sierra College welcomed their long-running Nursing Program back to the Rocklin campus with a recent Ribbon Cutting ceremony.

Placer County Woman Dies: West Nile Virus ConfirmedPlacer County health officials are able to confirm that an Ophir woman, who passed away earlier this month, did indeed have West Nile Virus (WNV).

3 Teens Arrested in Burglary and Vandalism of Country ClubA Placer County Sheriff's detective apprehended three juveniles Thursday in connection with recent burglaries and acts of vandalism at the Auburn Valley Country Club.

Roseville Author Releases New Book NationwideROSEVILLE, Calif. - The new book "Resonance," a stimulating new book by Roseville author Emily Elaine is now available nationwide.

Genderally Speaking LGBTQ Exhibition in RocklinRocklin, CA--The Ridley Gallery presents "Genderally Speaking", photography by Ron Williams in conjunction with Sierra College Pride Days (November 4-6).

Rocklin History Series Presents Julia Morgan's GoldThe Rocklin History Series continues on November 16, 2014 with a live presentation by Julia Morgan Historian Karen McNeill Ph.D. at 2 pm at the beautiful Old Saint Mary's Chapel

Free Identity Theft Prevention Class in AuburnThe Placer County Sheriff's Office is offering a free identity theft prevention class on Monday, October 27, from 6 to 8 p.m. at the Auburn Justice Center.

Loomis Students to Learn About Pediatric Iron Lung for World Polio DayIn recognition of World Polio Day, Rotary Club of Sunset Loomis will bring a pediatric iron lung to Loomis Grammar School and Loomis Basin Charter School




more news

Featured Yellow Pages Categories

Auto

Business

Health and Fitness

Home Improvement and Services