Yellow Pages |   News Updates |   Local Jobs |   Events Calendar |   Movie Times | Recycling
Rocklin and Roseville Today Weekend Events!
contact add event advertise 

Grandfather Appreciates Granddaughter with Rett Syndrome



A National Institutes of Health (NIH) website defines Rett syndrome as a neurodevelopmental disorder affecting girls almost exclusively. It's characterized, explains NIH, by "normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems walking, seizures, and intellectual ability."

Gregg Olson of Amboy, Minnesota, has a five-year-old granddaughter with Rett syndrome. In an interview, he said, "Evie can't walk or talk, but she can make sounds. She often has more frustration than most girls because she has to look at things to be able to tell you she wants them. She can roll on the floor, but can't really crawl anymore. And it will get worse."

His granddaughter's life expectancy will be like other American girls until her mid-20s, he said, but after that she has a greater risk of death. Olson has heard of women in their 40s with Rett syndrome. According to NIH, the disorder affects one live female birth in about 10,000.

"Evie is a wonderful little girl," he said. "She's taught me to take joy in the smallest things. An average five-year-old girl would be yelling and running around and carrying on, for example, but if Evie looks at me and giggles, I get a tremendous reward. She's also taught me to not look too far into the future. For instance, when she was first diagnosed, the doctors talked about her having seizures and the idea of my granddaughter having seizures just blew me away. But a (church prayer) group helped me through that. I now enjoy her for who she is right now. I enjoy whatever time I get to spend with her."

Olson also has begun looking at the bright side of situations normally not seen as bright. His granddaughter had a feeding tube installed, and although that wasn't Olson's ideal, Evie no longer has to experience the foul taste of her medicine. It goes directly into her stomach.

He offered this advice to parents: "First, don't try to understand why this has happened to you because you won't be able to understand. Just know that God doesn't make mistakes and you didn't do anything wrong. Also, we've gone through tremendous ups and downs over the last five years and sometimes the downs have been brutal. Pray for calm in the midst of the storm."





LittleGiantFudge.com and Palmer Bus Service make this column possible.

Daniel J. Vance is a licensed professional counselor and national certified counselor from Vernon Center, Minn. His weekly newspaper column Disabilities has been published in more than 260 newspapers.

Daniel J. Vance may be reached at www.danieljvance.com



Placer County News Headlines

Sierra College CACT Partnership Wins AwardSierra College, the California Conservation Corps and Golden Sierra Job Training Agency were recognized by the Placer County Economic Development Board

David Boesch Honored at North Lake Tahoe Awards DinnerPlacer County Executive Officer David Boesch was presented the Public Servant of the Year Award at the North Lake Tahoe 61st Annual Community Awards

Garth Brooks Tickets: Six Nights in SacramentoSaddle up cowboys and cowgirls! Garth Brooks will be making the first California appearance on his current world tour

Vacation Deals: On Tight BudgetsLet's face it, we all love our vacation time. A time to break off from everyday routines, ditch a portion of the responsibility we call life and enjoy doing what we love

Joyce and Jim Raley Teel & Joseph Gallo HonoredMore than 700 guests came out to honor Joyce and Jim Raley Teel, Raley's Family of Fine Stores and Joseph E. Gallo at their induction into the California Grocers Association Educational

Roseville Solar City Location Looks to Fill 300 JobsSolarCity , one of the nation's leading solar providers, announced its move into a vast new Roseville, California office to accommodate its growing local staff.

Republicans Start Swinging in Auburn Golf BattleAuburn, CA- The temperature are rising and Republicans will be heating it up in Auburn at the 4th Annual Placer County Republican Golf Tournament

Top 100 Paying Jobs in California (Part 5)Part 5 in the countdown to #1 to the Top 100 Paying Jobs in California

Jessica's Law Enforcement Changes Prompt ResponseJessica's Law authors George and Sharon Runner today responded to a decision by the California Department of Corrections and Rehabilitation to stop enforcing Jessica's Law residency

Maria Menounos: Special Olympics Global AmbassadorThe Special Olympics has announced that author and television personality Maria Menounos of E! is joining the Special Olympics family as the movement's newest Global Ambassador.

Van Halen to play Shoreline Amphitheatre on July 16For Northern California fans, Van Halen's only scheduled area appearance will take place at Shoreline Amphitheatre in Mountain View on July 16.

Rocklin Home for Sale: Retreat at Whitney OaksA brand new, custom home on Whitney Oaks golf course lot is now available in Rocklin.


NEWS: In Case You Missed It