Down Syndrome Information Alliance
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Down Syndrome Information Alliance
The Down Syndrome Information Alliance provides support and resources to empower individuals with Down syndrome, their families, and our community.
We envision a community where people with Down syndrome are empowered, respected as individuals, and accepted as valued participants in neighborhood schools, community activities, and the business world.
After experiencing the educational, social, and support benefits offered by other Down syndrome advocacy groups around the country, the Bermudes, Green-Prieto, and Linn families - each having a young child with Down syndrome - formed the Down Syndrome Information Alliance. Together, with Sally Dominguez (whose granddaughter has Down syndrome) and Nicole Besoyan (whose daughter has Down syndrome), these families served as the founding Board of Directors. DSIA became affiliated with the National Down Syndrome Congress and the National Down Syndrome Society and began providing community services in late 2004. By mid-2005, DSIA had connected with local hospitals and became the local source of information for medical professionals and parents. In our first year, DSIA distributed 150 parent guides!
DSIA now provides regular educational symposia, resources, support, activities, and myriad programs for the Down syndrome community.
Primary Organization Category
Human Services / Developmentally Disabled Services/Centers
Geographic Area Served
El Dorado County
Our top needs include:
1. Volunteers that are interested in event planning, fundraising and grant writing.
2. Funding for our Medical Outreach and DS 101 Programs. The DSIA Medical Outreach Program provides information and support to the medical community who is giving the families a diagnosis of Down syndrome and following up with care. The DS 101 program provides information and supports the professionals involved in the education of children with Down syndrome.
3. Funding for a Down syndrome clinic - to have medical professionals with an expertise in Down syndrome and all the medical related conditions so that our adults with Ds are living longer, healthier lives.
Complete Profile and Financial Information may be viewed online at Giving Edge
Join us by taking part in the 24 hour giving challenge to support the many nonprofits in our region.
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