Multiple Sclerosis: Understanding and Communication Important
The National Institutes of Health defines multiple sclerosis (MS) as "an unpredictable disease of the central nervous system. It can range from relatively benign to somewhat disability to devastating, as communication between the brain and other parts of the body is disrupted." Most people with MS have muscle weakness in their extremities, and balance and coordination difficulties. Half of all people affected ultimately have cognitive impairments.
In 2011, Jeff Gallatin, began the process of grieving after the passing of his 72-year-old mother Carol, who had chronic progressive multiple sclerosis. Carol had been a choir director, a hospice "clown" for children, a storytelling guild president, a Northwestern University marketing graduate, and the community affairs director for a division of Rockwell International in Cleveland.
"It's still an emotional subject for me," said Gallatin, an Ohio newspaper associate editor, of discussing his mother's death. "My mom had polio as a kid, but had always been able to overcome (her physical difficulties). In the mid- to late- '90s, little physical challenges began cropping up with her. She went from using a cane to a walker to a manual wheelchair. In 2001, I moved in with her."
Doctors apparently had trouble diagnosing her, maybe because MS usually first affects people between the ages of 20-40. One day about two months after Jeff moved in, Carol couldn't get out of her rocking chair, which moved a friend to suggest more tests that finally yielded a diagnosis.
"Then they said my mother would never get out of the nursing home (because of MS)," said Gallatin. "But they didn't know my mother." After 18 months there, Carol moved back in with Jeff until her passing in 2011. At the end, she had paralyzed legs.
Perhaps the most difficult aspect of being his mother's caregiver ten years was in having to watch her use a wheelchair. She had been such a proud, professional woman, who had raised two children on her own as a divorcee.
As for advice to other caregivers of parents, he said, "Be sure to talk and communicate with (the parent). For example, our Saturday morning was sacred to us. We'd talk and catch up. She was a wonderful sounding board."
Gallatin said he wasn't a perfect caregiver. What helped him a lot was having good bosses, who allowed him to occasionally leave work to help out his mother.
LittleGiantFudge.com and Palmer Bus Service make this column possible.
Daniel J. Vance is a licensed professional counselor and national certified counselor from Vernon Center, Minn. His weekly newspaper column Disabilities has been published in more than 260 newspapers.
Daniel J. Vance may be reached at www.danieljvance.com
Pet Care | Real Estate | Restaurants | Tech | View All | * Add/Upgrade Business
Placer County News HeadlinesPediatric Telemedicine Consults Delivers Cost SavingsResearchers at UC Davis have conducted a comprehensive study to determine whether pediatric telemedicine consultations with rural emergency departments
50 Days of the Grateful Dead: Sugar MagnoliaIn a nod to the recent Dear Jerry Celebration held at the Merriweather Post Pavilion and an online request, we step back in time 32 years to June 1983.
Memorial Day Weekend : All Aboard as Railroad Season BeginsWhen the whistle blows Memorial Day weekend it will be full steam ahead this summer aboard the historic Virginia & Truckee Railroad
American River Project: Water Transfer ApprovedDrought Watch: At the May 21 meeting of the Placer County Water Agency (PCWA) Board of Directors, the Board approved a resolution authorizing the release of 12,000 acre-feet
Granite Bay Cuts Water Use 32 PercentDrought Watch: Customers in San Juan Water District's retail service area reduced their water use by 32 percent in April compared to 2013.
When 20 Billion Gallons of Water Savings is Not EnoughDrought Watch: Even though customers from 19 Sacramento-area water agencies have saved more than 20 billion gallons
$900,000 Window Project: Placer County Courthouse AuburnWork is under way on a construction project that will restore and repair aging windows at Placer County's Historic Courthouse in Auburn.
Squaw Valley High Profile Development ProposedA proposed high-profile project is in the works that would transform 94 acres in Squaw Valley into a development offering numerous resort residential options and amenities
Auburn Library Opens with Flooring Project CompletionThe Auburn branch of the Placer County Library has been closed since May 1
Kaiser Permanente Roseville Honors Fallen for Memorial DayKaiser Permanente Roseville Medical Center held a special ceremony yesterday honoring the memories of all who have died on behalf of our country
Raley's and iFoster Launch Foster Youth Hiring Program iFoster has partnered with Raley's Family of Fine Stores to develop a new hiring program for foster youth.
Auburn Non-Profit Above All Adventures Utilizes IndiegogoIn Placer County, 13 is the average age for first time alcohol and illegal prescription use, and binge drinking increases threefold between 9th and 11th graders
NEWS: In Case You Missed It