Hidden Disability Not Believed
No one knew exactly what was happening to Dorothy Smaniotto of Ocean View, New Jersey. In November 2007, she was having breathing troubles and feeling unwell, and her doctor speculated a blood clot on her lung was responsible. But a hospital emergency room found no blood clot.
A month later, she began experiencing slurred speech and left-side paralysis. The EMT crew believed she had experienced a stroke, but the treating physician diagnosed a migraine. At the time, she was only 38 and not in a high-risk group for stroke.
It wasn't until July 2008 when a physician diagnosed antiphosopholipid syndrome (APS). In a telephone interview, Smaniotto said, "That's when I learned I'd already had two strokes and a heart attack." By then, she had lost most vision in her right eye and would have another heart attack in months following.
A National Institutes of Health website defines APS as an autoimmune disorder often called "sticky blood syndrome," which can lead to blood clot formation in veins and arteries. It's treatable.
As for lasting effects from her strokes, she said, "I now have slower speech, short-term memory loss, and left side weakness. I stopped working as a pharmacy technician because my company considered me a liability (after the strokes). I enjoyed my job and had worked almost 25 years for the same company."
With APS, she looks "normal" on the outside. One of her biggest frustrations has been talking with people who don't think she has a disability.
She said, "I know people mean well when they say I don't look sick, but sometimes I just want to scream. It doesn't matter what's happening on the outside. It's what's happening on the inside of my body (that causes problems)."
As if this weren't enough, and unrelated to APS, doctors in 2008 also learned she had Braca-2, which is a family mutation gene causing breast and ovarian cancer. So Smaniotto had a hysterectomy and double mastectomy. Her sister had died of breast cancer and her mother of breast, ovarian, and lung cancer.
Smaniotto authored a book about her experiences, "The Burgundy Journey: Using Hope, Humor and Faith to Conquer Adversity, No Matter What." Also, to find a cure, the APS Foundation of America this year asked Smaniotto to participate in a film documentary to help raise awareness and prod the National Institutes of Health into funding APS research.
Sponsored by Blue Valley Sod.
Daniel J. Vance is a licensed professional counselor and national certified counselor from Vernon Center, Minn. His weekly newspaper column Disabilities has been published in more than 260 newspapers.
Daniel J. Vance may be reached at www.danieljvance.com
Placer County News HeadlinesBest & Worst Cities for People with DisabilitiesThe results are in for 2016's Best & Worst Cities for People with Disabilities.
Allyhoos Comfort Young Hospital PatientsIt all began with her own physical suffering, and through this suffering she has helped heal others.
Seniors First Receives Grant from Alzheimer's Foundation of AmericaSeniors First, located in Auburn, has announced the receipt of a $5,000 grant from the Alzheimer's Foundation of America
UC Davis Alzheimer's Disease Center Grant RenewedThe UC Davis Alzheimer's Disease Center, which investigates cognitive aging and dementia, has received renewed funding of $6.9 million
Roseville Gas Prices Ticking UpwardRoseville, CA- Gas prices in Roseville and surrounding communities continue to push upward
Roseville Woman Sentenced to 14 Year Prison SentenceRachel Siders, 41, of Roseville, was sentenced to 14 and a half years in prison for her involvement in mortgage fraud schemes that cost financial institutions over $17 million
Hyundai Santa Fe has two diverse modelsRoseville, CA - One of Hyundai's more impressive vehicles is the Santa Fe, a sport utility vehicle that seats either five or seven people, depending on the model chosen
Lincoln Showcase: Fun, Exceptionally DoneLincoln, CA- Under a clear and comfortably warm autumn sky, Lincoln once again rose to the occasion for the annual Lincoln Showcase
WJU Opens New Science LabROCKLIN, Calif. - William Jessup University recently announced the opening of its new Gandy Chemistry Lab to students this semester, thus paving the way
Sacramento Capital Cup Fundraising Shatters $500,000 Goal Roseville, Calif. - Organizers of the Sacramento Capital Cup announced that they have surpassed their $500,000 fundraising goal
Video: Roseville State of the City AddressRoseville, CA- Roseville Mayor Carol Garcia kicks off the 2016 State of the City address highlighting the city of Roseville's strengths.
Paid Placer County Poll Workers NeededAUBURN, Calif. -- Can't get enough of this year's election? The best seats in the house on Election Day are still available - and we'll pay you to take them.